0

Syndactyly and My Son

syn·dac·tyl·y
/sinˈdaktəlē/
noun
 1. The condition of having some or all of the fingers or toes wholly or partly united, either naturally (as in web-footed animals) or as a malformation.

I’ve never heard of this term. But, I became very familiar with it once my son was born. My son was born with Syndactyly on both of his hands. The skin on his right middle and ring finger were fused together, almost looking as on entire finger.
And his left middle and ring had webbing in between.

This isn’t life threatening but can cause some setbacks for children, and it does require surgery.

His former pediatrician (before we switched to a better one) recommended a plastic surgeon an hour and a half away from where we lived.  My son was two months old when he first saw him.  When we walked into his office, we were greeted by silcon breast implants inside of glass cases (yes, these were everywhere–displaying them like ancient artifacts in a museum).
We were to wait until he was at least a year before surgery because my son would have to be placed under anesthesia.

However…

This momma, did NOT want this doctor touching her son. Why? Not because of the implants but because of eight words he said:

I will have to look at my textbook.

Me: “Excuse me?”

He then explained to my husband and I that he rarely does these surgeries, maybe once a year and would have to look at his textbook to see how to perform this type of surgery.

Uh-unh! No way!  Hands off my boy!!

So, I began the search for a surgeon myself–one who does hand surgeries often, especially these types.

While talking on the phone to my mother about this one day, she mentioned Shriners Hospital for Children.  She had been there when she was young as well (she was born with only her right arm).  So, I called them. They set me an appointment date so we can discuss whether this was the right surgeon for my son or not.

And, he was. He does these types of surgeries several times a week to several times a month.  He even explained to me what he would do, step by step.

Surgery was scheduled for July of 2015. I was a complete mess that entire week before it happened and could not sleep at all the night before. I would beg God every minute I could that He would allow me to switch places with my son. I was scared and nervous. The thought of them putting my baby under and cutting into him petrified me.

My fears subsided after he came out of surgery. It went very well and the entire staff at Shriners was utterly AMAZING, especially the surgery staff.  I, mean, they had to deal with a stressed out, overly emotional momma.  And, yes, I was a complete mess that day (although I could blame it on the hormones of pregnancy (I was 2 months pregnant with my daughter at the time).

I am a stay-at-home mother.  I am with my son all day long. I have never been away from him but for an hour one time. So, when the nurses took my sweet boy out of my arms, I broke down and sobbed like the biggest baby, ever.  Luckily hubby was there to comfort me.

Do I have any regrets of choosing Shriners? Absolutely not! As I stated before, they were all AMAZING and ever so incredible. I’d recommend them to anyone.

(After surgery–right hand)
008

We are not done with surgery. My son’s left hand still needs operated on and there is always the chance of the skin creeping up and trying to grow together.  But as of now, he can separate the fingers on his right hand and it is not uncomfortable for him to put pressure on anymore.

(Before surgery–left hand)
005

I will not be as nervous about this next surgery (in April) as I was the first time, but I still am dreading it. I will be glad when it is all over with.

Thanks for reading!

Advertisements